WBD 2021

Stop Multiple Sclerosis: World Brain Day 2021

Every five minutes, someone receives the life-altering diagnosis of multiple sclerosis (MS), a neurological disease that affects more than 2.8 million people of all ages worldwide. This World Brain Day is dedicated to raising awareness for MS. Join us on July 22 2021 as we work together to stop MS by diagnosing earlier, providing better access to life-changing treatments, and advocating for improved quality of life for those living with MS and their caregivers.

 

 

 

About World Brain Day

World Brain Day 2021 is dedicated to multiple sclerosis (MS), a neurological disease that affects 2.8 million people of all ages globally. Disease-modifying treatments slow the progression of MS, yet access to these medications is unavailable in many parts of the world. This World Brain Day, let’s work together to stop MS by diagnosing earlier, providing better access to life-changing treatments, and advocating for improved quality of life for those living with MS and their caregivers. Join the World Federation of Neurology (WFN) and the MS International Federation (MSIF) on July 22, 2021, as we share vital information about the signs, symptoms, and treatment of MS.

Key Messages

  • Disability: Multiple sclerosis is a debilitating neurological disease that impacts every aspect of a person’s life, with effects ranging from cognitive impairment to significant physical disability.
  • Prevalence: 2.8 million people of all ages globally are affected by MS, and someone receives this life-altering diagnosis every five minutes.
  • Education: We must work with health care professionals to recognise the signs and symptoms of MS so people can be diagnosed early and effectively treated.
  • Access to Treatment: Disease-modifying treatments slow disease progression, dramatically improving the quality of life for those living with MS, yet access to these medications is unavailable in many parts of the world.
  • Advocacy: We can stop MS by diagnosing earlier, providing better access to life-changing treatments, and advocating for improving the quality of life for those living with MS and their caregivers.

Message from Orly Avitzur, President of the American Academy of Neurology (AAN)

Message from Mary Post, chief executive officer of the American Academy of Neurology (AAN)

Created 2021-07-20 09:12 by an administrator; Last edited 2022-01-31 08:59 by an administrator

[WBD21_Interview] MS Brain Health World Brain Day 2021

20 Jul 2021

Webinar

On World Brain Day, the WFN and MS International Federation hosted a joint webinar.

An esteemed panel of speakers took part in a webinar discussion on how we can work together to stop MS by diagnosing earlier, providing better access to life-changing treatments, and advocating for improved quality of life for those living with MS and their caregivers.

World Brain Day 2021 Panel

  • Prof. William M. Carroll — President of the World Federation of Neurology​
  • Prof. Tissa Wijeratne — Chair of World Brain Day, World Federation of Neurology​
  • Prof. Wolfgang Grisold​ — Secretary General of the World Federation of Neurology
  • Rachel King — International Evidence Manager of the MS International Federation

 

Taiwan Neurological Society Press Conference

Taiwan Neurology Society (TNS) organized an online press conference on the 22nd of July, 2021 to discuss multiple sclerosis (MS). This online conference attracted many local media to participate which successfully got a lot of public attention to MS in Taiwan.

 

World Brain Day Message From The National Institute of Mental Health and Neurosciences (NIMHANS)

 

MSIF launched the first part of the Atlas of MS (3rd edition), which showed us that there are 2.8 million people around the world living with MS. The atlas highlights the wide disparities and barriers that exist globally in accessing diagnosis, disease modifying therapies and care.

Although, as you know well, there have been many important changes in the health landscape for people with MS in recent years regarding diagnosis and therapy options, unfortunately we continue to see inequalities across and within countries. Some of the key findings from the atlas include:

  • More than three quarters of countries worldwide face issues that prevent early diagnosis of MS
  • In 7 out of 10 countries, people with MS face barriers in accessing disease modifying therapies
  • Therapies for invisible symptoms like fatigue and cognitive impairment are unavailable in 4 out of 10 countries

You can find the full report, and a range of other tools in the hyperlinks provided. MSIF have also produced a new Atlas of MS video - barriers to diagnosis, treatment and care which centres around the key messages shown above. You can watch this on YouTube, Facebook and LinkedIn. Please feel free to share with your networks. The report and video are just available in English at the moment but the Spanish and Arabic versions should be available soon – the other tools are available in all three languages already.

We invite all MS patients and caregivers to share their story of MS on a short video message ( less than 90 seconds) and email the message to wbd2021@wfneurology.org

Interview with Ms Rachel King, MSIF

World Brain Day Celebration in India

By Chandrashekhar Meshram, JMK Murthy, Nirmal Surya, U Meenakshisundaram

The theme "Stop Multiple Sclerosis" of this year's World Brain Day by World Federation of Neurology was pertinent for patients of Multiple Sclerosis, their caregivers, family physicians and general public and therefore there was lot of enthusiasm about the event. Indian Academy of Neurology had organised public education activities to give information about patient care, education, and additional research for those living with Multiple Sclerosis. This neurological disease impacts every aspect of a person's life, with effects ranging from cognitive impairment to significant physical disability. The disease is usually less discussed in public meetings therefore the theme carried a lot of significance.

World Brain Day was cerebrated throughout India, on 22nd July. Due to ongoing COVID pandemic, the campaign was mainly through print and electronic media with virtual meetings in different cities of the country.

Dr.Chandrashekhar Meshram Past President of Indian Academy of Neurology and chief coordinator of Public education activities of IAN, issued the press release. Articles giving Information about Multiple Sclerosis were published in 8 newspapers.

Indian Academy of Neurology had conducted a public education and awareness activity on Multiple sclerosis , through a virtual meeting in the form of panel discussion on 22nd July. President of World Federation of Neurology Prof. William Carroll was the chief guest. Prof Carroll in his address mentioned that in last 25 years the world of multiple sclerosis has been transformed by the steady success of diseases modifying therapies. However the cost of therapy is prohibitive even for people in developed countries. We must strongly advocate the Governments, WHO and Pharma to develop supply and distribution chains to those currently excluded from DMT. Director of neurosciences, Bombay Hospital Institute of Medical Sciences, Mumbai, Prof Bhim Sen Singhal inaugurated the event. He mentioned that we are diagnosing multiple sclerosis much more due to new tools like MRI at affordable cost. He stressed on the importance of increasing awareness of MS so that diagnosis is made early, disability is prevented and did hope that drugs will be available to the needy. President of IAN Dr J M K Murhty, IAN President Elect Dr Nirmal Surya from Mumbai and IAN Secretary Dr U Meenakshisundaram from Chennai were present prominently. Dr Chandrashekhar Meshram, made opening remarks and introduced the faculty.

Experts in the field of Multiple Sclerosis like Dr Lekha Pandit from Mangalore , Dr Rohit Bhatia from New Delhi, Dr Dheeraj Khurana from Chandigarh , Dr Netravathi from Bangalore and Dr Tapas Kumar Banerjee from Kolkata were the panellists. Dr Sumit Singh from New Delhi moderated the session. Various aspects of multiple sclerosis were discussed and questions from the audience were answered during the session.

Mumbai - On this occasion Epilepsy Foundation in association with National Health Mission, Govt. of Maharashtra organized "ASHA Sensitization Program on Epilepsy- Part II" for Asha's workers. The session was chaired Dr Vijay Kandewad, Jt Director Technical NHM. Dr N Ramaswami commissioner health services and mission director Govt of Maharashtra inaugurated the event. Dr Satish Pawar addl mission director NHM also addressed on the occasion by Chairman of Epilepsy foundation Dr Nirmal Surya explained about the activities of Epilepsy foundation including camps organised throughout the year. Dr Tissa Wijeratne, Chair of World Brain day of WFN highlighted the importance of World brain day and explained about this year's theme stop Multiple sclerosis. Dr Mamta Bhushan Singh from New Delhi, Dr Nandan Yardi from Pune , Dr Nilesh Kurwale from Pune and Dr Chandrashekhar Meshram from Nagpur addressed on this occasion.

Dr M A Aleem from Trichy gave an interview on how Multiple Sclerosis patients can deal with covid which was published in newspaper.

These public education activities would help in better understanding of multiple sclerosis and improving outcome for the patients.

Official Partners

Prof. Tissa Wijeratne MD FRACP FRSM FAAN FAHA FRCP (Edin) FRCP (London)
Chair, WFN Public Awareness & Advocacy Committee
Senior Neurologist and Director, Stroke Unit, Neuroscience Research Unit, Movement disorders program, Headache program at Western Hospital, Melbourne, Australia

Univ. Prof. Dr. Wolfgang Grisold
Ludwig Boltzmann Institute for Experimental and Clinical Traumatology
Vienna, Austria
WFN Secretary-General

wfn logo.png  Multiple Sclerosis International Federation

Contact

Yakkety Yak marketingAshley Logan
Yakkety Yak Marketing

e: worldbrainday@wfneurology.org

Mrs Jade Levy
WFN Education Project Coordinator (Jade@wfneurology.org)